The Road to Recovery - "Got Tools?"

“It’s going to be ok. I am here for you. You will be at peace. Hail Mary full of grace…” I’m examining her face. She has such a beautiful glow to her skin, as if she aged in reverse in a matter of hours. She appears at peace, but she has shallow breathing. Her mouth open; eyes open but focused on heaven. Although she has had dementia for several years, the coronavirus has chosen her. I wish her life didn’t have to end this way. I rub her hand with my plastic covered thumb as it’s cupped in hers. As she’s passing, there is nothing I can do, as these were her wishes. All of sudden, I wake up drenched in sweat, breathing heavy. Within a few seconds, I realized I was just dreaming, but was I really?

Working with individuals with dementia who have contracted COVID-19 has been rewarding yet incredibly challenging. After a few of these nightmares, I realized quite quickly, I don’t want to go down this road again. I experienced PTSD...

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Anxiety in Dementia

Anxiety and worry will show up differently for our family, patients and clients who have dementia. It would be great if they could just say, “I’m feeling really anxious right now.” To recognize and then verbalize it is something we might expect but won’t get. If we continue to expect this to happen, then this in of itself leaves us as caregivers endlessly frustrated. I mean, many of us don’t recognize and verbalize it unless we have really good insight. How would we expect people with dementia to do this?

So why can’t they just tell us? Unfortunately, the skills needed to do just this simple task are dwindling, like insight, good judgement, problem-solving, anticipating risks and language, because the parts of the brain that manage and control these skills are affected by the disease little by little. 

Therefore, instead of words, individuals with dementia are going to show us in other ways that they are anxious. For instance, they might...

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